MPS VI Maroteaux Lamy

Zahra is a lovly , nice, kind little girl ..born in Baghdad at 6 Augest 2003. She came to Sweden at 1 November 2007 and was diagnosed in May of 2008. Her older sister died from Maroteaux Lamy in 2007. The 21 of August Zahra finally recieved her first enzyme treatment. Zahra likes to go to "förskolan" and she likes all childrens